Its been a while....

August 9, 2013
Well, its been a while since I've written on here, mostly because things have been crazy, and somewhat because I don't think anyone reads this anyway. But, either way, I'm still writing. Since I last updated I've been in the hospital numerous times, mostly from line infections and then trying to get certain parts of my stem cell transplant going. Yes, my stem cell transplant was finally happening! But, of course, they postponed it again, AFTER I already started it. After I had chemo and lost all my hair, after I spent days in the hospital because of the chemo. The day before I was supposed to get my stem cell transplant finished, my doctor calls and tells me they're postponing it because of my heart. You see, back in like March of this year, my heart doctor didn't like something that was going on with my heart, which he told to my stem cell doctor. So, what do they do about it? Nothing, until the freakin' day before I get my transplant. They had months to have already done something and they did NOTHING!!!! So, now I'm just waiting, once again, to see if this medication they gave me to fix this problem that they knew about months ago, is going to work. If it does what they want it to do then they'll continue with the transplant. If it doesn't work... I'm probably screwed. Yeah, I don't feel really confident or anything about this at this point. So far its all been a pretty bad experience. And on top of all that, my beautiful, 17 year old cousin passed away! That hit me pretty hard, and I miss her like crazy, but I know she's with God so I'm good with it.
So, I should find out more about the transplant at the end of this month, will update more then, not that anyone really cares..... 
 

Update

November 9, 2012
Well, I'm supposed to be getting my stem cell transplant in December now! Hopefully sooner, I really want to get it done so I can get better. I appreciate everyone that has been praying for me, it means so very much to me. This has been a really hard year for me, I've already been in the hospital 4 times this year and there will be more, especially if I run out of pain meds and/or when I go into the hospital for my stem cell transplant. Please pray for me to get my stem cell transplant soon a...
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Finally!

November 9, 2012
Hey Everyone,
I'm sorry I haven't updated for so long, but my computer died and by the time it was fixed it of course didn't have my sign in info anymore and I couldn't get it for a while. But I finally did! Yay! I'm back. I will update as often as possible from now on. Thanks for being patient! God Bless!

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Happy New Year?

January 3, 2012

Well, I'm not really sure it'll be a good year for me, but we can only hope right? Hope that everything comes through for me. That the FDA and whoever else approves the filter I need so I can get my stem cell procedure done. That it happens quickly so I'm not in the hospital for my birthday. That I don't lose my hair. That I don't die or have a bad reaction. That I don't have to be in the hospital for very long. That God will be with me and my family every step of the way and protect me. And ...


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What's been going on lately

October 10, 2011
Well, little did I know, but the past few months my arthritis has been coming back, progressively getting worse. It started in my hands and has worked its way throughout my entire body. So, I am now in even more excrutiating pain and am having to wait and wait to see the doctor to get this taken care of. I can barely walk at this point and it's driving me crazy, I can't stand it. I need to get back on Enbrel, but the last time I was on it it took 6 months to work, so the sooner I get on it th...
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Living in the Hospital

September 22, 2011
I know it's been much too long since I have updated and it's been because so much has been going on. Last year, 2010, during the spring and summer I thought I was doing really well. I was planning on going back to work and even going back to school. I was very excited and trying to work things out, thinking about what I wanted to study, which college I'd choose, things like that. I had a few schools I was interested in and that were interested in me. Then in August, I'd pretty much made my de...
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10/30/09

October 31, 2009
Sorry it's been over a month since I've updated. It's been a pretty hectic for the past month. Hurt my wrist/hand pretty bad, still waiting to hear back from the docs to see if it's fractured or anything. Had to have another c-diff. test done. Gotta get my blood drawn again next week. Saw a new doc. for my migraines, really hoping he'll be able to help me, no one else has been able to so far. My MG is driving me crazy, went to a meeting held by the Myasthenia Gravis Foundation of Illinois, In...
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9/26/09

September 26, 2009
It's been over a week now and I still haven't heard back from my doctor about my blood test results! This is so frustrating! I don't know what to do!
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9/22/09

September 22, 2009
Well, I got my blood drawn last week, but for some reason I'm still waiting for the results. Shouldn't be taking them this long to get back to me. It's very frustrating. I can't go up on my med. until I get the results! Hopefully someone will get back to me today!
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9/17/09

September 17, 2009
Well, I am basically playing a waiting game at this time with my MG. I'm on 3 different medications for it right now and one of them is new, Imuran (Azathioprine), and that's the one we're waiting on. Hopefully it will work. I have to go get my blood drawn tomorrow to see if I can go up on my Imuran and hopefully we'll see an improvement after that. Things are pretty hard right now for me. On top of everything I am sick right now with a sinus infection so that's causing different diseases of ...
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